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About Us

Kidney Kids NZ is a parent driven organisation set up to meet the needs of children, and the families of children, who have kidney disorders.

We are a non-for-profit organisation that was founded in 1990 to provide emotional support and to help parents of children with kidney disorders. We can assist you to obtain the best services possible for your child’s needs.

For kidney kids and their families to lead the best lives possible

“To support kidney kids and their families throughout NZ on their journey with kidney disease”

We believe that every child/young person and their family is entitled to be treated with dignity and respect and encouraged to reach the highest level of independence compatible with their kidney disease.

Our Values

  • Caring Attitude – Kidney Kids NZ demonstrates compassionate support and concern for children with kidney disease and their families.
  • Responsiveness – Kidney Kids NZ recognises the choices our kidney kids make and encourage each person to take control of his/her life moving into their adult years. We respect the roles that families play in helping their child to make these choices.
  • Individualised Support – Kidney Kids NZ acknowledges the needs of our kidney kids and their families can vary significantly and change over time. We seek to understand the individual and offer the right support to each kidney kid and family as they arise.
  • Partnerships – Kidney Kids NZ works with a wide range of partners and advocates for quality services for all kidney kids and their families.

Kidney Kids NZ aims to educate our kidneys kids, their families, and the wider public about kidney function and how to keep your kidneys healthy.

Our Support Role
Having a chronically ill child is one of the most draining and difficult tasks a family can face. The physical challenges, medical needs, and emotional demands can have a huge impact on the entire family.

Our Family Support Services are designed to offer support in each of these areas, to all members within the family structure including parents/caregivers, siblings and our kidney kids.

  • We provide support through:
  • Resources & Information
  • Strengthening Families
  • Settlement Support
  • Kidney Kid Development

We organise support group meetings, coffee mornings, educational evenings, and special events. We hold two annual camps each year for our kidney kids who are at, or near, end stage renal failure (ESRF) and kidney kids who are experiencing social distress.

Community Liaison Parent Regional Coordinators
Kidney Kids NZ develop and maintain community networks by being involved in community activities, attending meetings, and liaising with the media as appropriate. With the help and support from our Parent Regional Coordinators it is our aim that all or families are connected within their wider communities.

Human Resources

Kidney Kids NZ employs a small team of support staff to provide services to children with kidney and urinary disease and their families. They Are;

Courtanay Gray
National Family Support Manager

Courtanay has recently finished a 3 year degree studying a bachelor of human services majoring in disability studies. Courtanay previously worked in the disability industry providing support services to young persons with a disability and their families. Her aim is to build and maintain connections with families throughout New Zealand to provide individual and specific supports to Kidney Kid families.

Rachel Barrett
National Family Health Manager

Rachel has a nursing background with extensive experience working within the renal area for the past ten years. As a trained nurse she will offer education, support, advocacy, and awareness, both with Kidney Kid families and communities throughout New Zealand.

Catherine Perry
Family Support Assistant

Catherine is currently in her first year at University, studying a Bachelor of Social Work. Catherine has spent most of her adult life establishing a career in the health and disability sector, working in both New Zealand and Australia. Her continued studies will be an asset to Kidney Kids NZ as we update our family support services.

Monitoring and Evaluation
Staff keep accurate client and financial records so that we remain accountable to families, funders and other stakeholders.


Thanks for making a real difference with your generous support, may your kindness come back to you in many wonderful ways!

How Can I Help?



Thanks for making a real difference with your generous support, may your kindness come back to you in many wonderful ways!