We are a non-for-profit organisation that was founded in 1990 to provide emotional support to our kidney kids and their families.
For kidney kids and their families to lead the best lives possible
“To support kidney kids and their families/whaanau throughout NZ on their journey with kidney disease”
We believe that every child/young person and their family is entitled to be treated with dignity and respect and encouraged to reach the highest level of independence compatible with their kidney disease.
- Family Focused – Supporting families with a child or young person with kidney disease by providing personalised support
- Empowerment – Empowering families and children to connect with resources and information to achieve best possible outcomes
- Passion – We work enthusiastically with families to provide service
- Integrity – To work within a framework of trust, honesty and fairness
Our Support Role
Having a chronically ill child is one of the most draining and difficult tasks a family can face. The physical challenges, medical needs, and emotional demands can have a huge impact on the entire family.
The Kidney Kids Support team is a group of individuals passionate about providing support to all members within the family structure. Including, parents or caregivers, siblings and our kidney kids. We provide support through:
- Resources & Information
- Family Support Events
- Kidney Kid Development
- Hopsital Visits
- Home Visits
- Financial Assistance
We also hold two annual camps each year for our kidney kids who are at, or near, end stage renal failure and kidney kids who are experiencing social distress. Additonal to this we hold several regional Christmas Parties.
Regional Parent Contacts
With the help and support from our parent contacts it is our aim that all of our families are well connected within their wider communities. Our parent contacts bridge the gap between the Kidney Kids NZ support team visits to our regions and other direct contact we have with our “kids” and their families.
Due to chronic illness many of our “kids” may fall behind with their education. We offer the opportunity to apply for personal development grants through the John Velvin Trust. These grants help our kids to reach their full potential, which can be used towards their educational or personal developmental goals. The John Velvin Trust assess each application against their criteria.